The British writer, Alis Rowe, frequently writes about autism. One of her quotes that hit close to my heart: “I can be talkative and expressive when with a single person, but the more people there are around me, the less interactive and more introverted I become. Inside a group of people, I can’t contribute/function, and tend to ‘shut down’ because I find it all too overwhelming.”
I lived that quote during a recent episode where I was in a group setting in a hospital waiting room. I had been in hospital waiting rooms before but it was the first time since learning I had an Autism Spectrum Disorder (ASD). One thing I did differently with the knowledge of my diagnosis was preparing for this gathering. I had my fidget toys like my spinner and cube. I had my smart phone with its many apps. I had no idea how long I would be there and if it went longer than expected, I had my comfort toys with me.
The group consisted of mostly people I knew but there was a dozen of those I hadn’t met before. My typical role in gatherings of three or more is to be the “silent” one. It doesn’t matter if I have known them most of my life or it is my first time to meet them. As soon as I arrived, there were almost a half a dozen people already there. Although I knew them, I immediately went silent. It is as if a mute button is attached to me and it always comes on by itself when I’m in a gathering of three or more.
As more came in, the social chatter and laughter picked up, but I wasn’t a happy camper. None of my topics of interests came up. Except for the one I came with, no one hardly spoke to me beyond the “hello, nice to meet you, or how you are doing, or nice to see you.” I guess maybe I send out “don’t speak to me” vibes without putting effort into it. On the other hand, I was fine with just the greetings. I secretly feared someone might ask me a question I couldn’t or didn’t want to answer.
That old lonely feeling of being an alien from another planet came back. I wanted to “stim” to soothe and comfort myself since I felt like a tea kettle about to boil over. I got out my smart phone and tuned into my favorite apps. I was the only one with ear plugs in their ears. I know it gave off the impression of aloofness but unknown to them, I was in survival mode.
The apps were not enough to soothe the “pain” I cannot describe. I whispered to the one I came with that I was going to take a walk. I used the excuse I wanted to stretch and exercise. Well, that was partly true, but it was far less about exercise for my body and more for my mental state. When I walked outside, I took a deep breath. It was like I had been drowning and managed to come up for air.
I started off my walk with tears rolling down my eyes. If I had let myself, I could have cried like a baby. I didn’t know why at first. I just was overwhelmed with sadness. After a few laps, the tears dried up. My batteries were recharged as they always are after a walk by myself.
When I returned, I saw another person had joined the gathering. The person wasn’t someone I was close to, but he was a sight for sore eyes. I knew he had ASD too! I made a beeline to sit next to him. We exchanged few words and that was okay. It was just having someone else besides me on the Spectrum there. One in a crowd is tough, but two in a crowd is less so.
I think I know why the tears. My ASD is a constant companion and there are times when it slaps me right in the face. This was one of those times when it let me know it is there and it isn’t going to leave my side. There is no cure for ASD. I can’t be like the others. I can’t join in on their chatter and laughter and enjoy it as they do. For me, such gatherings are draining and that isn’t going to change. The mute button will always come on.
Not wanting to end on a sad note, there was a moment during the gathering of an example of how I copy others’ behavior in social gatherings. It was an eye opener because I didn’t realize until after learning about my ASD and being in group settings that some social actions don’t come as natural to me as it does to others.
The room was big but low on chairs. When others entered the room where we were, the one I came with stood up, shook hands, and offered her chair. I first thought, “You mean I have to stand up?” If I had been the only one there, I wouldn’t have stood up. I would have thought, “Hello…” was sufficient. Offer my chair? I didn’t do that part at all. It wasn’t until after I got back home that I thought maybe I goofed on that one. You see, I was operating on the rule of “first come, first serve”.